Accepting the Meantime

By Amanda

Some individuals are able to find the cause of their chronic migraine, while other individuals live decades without knowing what caused their chronic migraine. In the same manner, some individuals are able to find something that actually works for them in terms of eliminating or decreasing the frequency and severity of their migraine.

On the other hand, there are individuals like myself, where nothing seems to reduce the frequency and severity of my chronic migraine. When you are an individual in my category, you have to be careful not to fall into the dark pits and learn to live in the right now, in the meantime.

The Dark Pits

Let us have a bluntly truthful moment here–have I ever considered giving up? The answer is simple: yes, I have had those thoughts and those moments. I have had those times where I felt like there was no hope of a cure and no point in going on. Depending on the day and on the particular pain cycle, I believe there are moments when some form of these thoughts cross the mind of most individuals with chronic migraine.

Luckily, for my own solace and for the people in my life that love me, I found ways and reasons to keep fighting the good fight. For me it has been a combination of knowing I would be leaving my husband alone in this life we have built, and the advocacy work I started with a small Facebook support group which eventually grew into its very own non-profit organization and several blog organizations.

Something about helping other people gives me the fire to keep going. Now after a very close call last year with my health, I was able to see just how many people care about me and would be devastated if they lost me. In addition, my fur babies would suffer while having to grieve for me if I chose to give up on my life.


The Meantime

In my case, they do not have a “cure” or something that will stop my pain when it starts today. The important part of that sentence is TODAY. The medical community has not found my solution, yet. This does not mean they will never find it.

I am by no means saying it is easy to hold on to the hope of one day waking up and not having this pain, but it is important to find the strength to do just that. There are many organizations out there fighting to bring awareness to the medical community about the need for better treatment and medication options for chronic migraine.

So, while there may not be a solution for you today, tomorrow, next week, next month, or next year, there could be the something that works for you. This is where living in the meantime comes into play.

If we choose to give up today, there is a whole life we are choosing to miss out on. While some try to argue living in pain is not living, I very much disagree. I say this because I see my step kids growing into their own people, I see my nieces growing and learning about life, and I continue to live my life with my husband.

By no means do I imply that it is always an easy test to overcome the darkness and to live in the meantime, but I am saying that it is very much worth it. In the times that you feel like nobody would notice if you were missing, I promise you that people would notice that you were missing.

Together, we all just have to survive until the medical community can get us those solutions that we need.

2 thoughts on “Accepting the Meantime

  1. Sally says:

    I could have written these words, from the age of 18 I have suffered with chronic migraines, I am now 46. I have tried everything and more! The only time I didn’t have them was through 3 pregnancies. I cannot imagine what life would be like without them and they have defined me as a person.


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