By Wanda - There are few things you need to know when talking migraines and disability. First, either you, or someone you know suffers from migraine—and no, not just because you are reading this blog. According to NIH and a 2015 study, migraine effects roughly 1 out of every 6 Americans, and 1 in 5 … Continue reading Migraine & Disability: A Battle Fought Round the World
By Migraine Mantras Team - We’re still only just beginning Migraine and Headache Awareness Month, but for those of us who regularly live with migraine and headache disorders, we are aware every single day. For many of us, the support of our chronically ill friends, as well as advocating, telling our stories, and just being … Continue reading Why Does Migraine Matter?
By Winslow - For June 2018's Migraine and Headache Awareness Month, our theme is "You are not alone." Migraines are one of the most isolating events a person can go through. When the very sound of someone else’s voice makes the pain increase, you are forced to seclude yourself. This is a pain no one … Continue reading You Are Not Alone
By Jorie - When I first heard the words, “I am diagnosing you with fibromyalgia,” I was in disbelief. My face said it all. I’d just turned 25 the previous month, had a whole host of other chronic illnesses I was lugging around, and was not ready to add another one to the ever-growing laundry … Continue reading My Life with Migraine & Fibromyalgia
By Jorie - The opioid crisis is bigger than ever, and as a result the government has stepped in to try to correct it. But their methodology isn’t exactly the most helpful for those of us living in chronic pain. The Don’t Punish Pain Rally seeks to raise awareness of this issue. Patients and advocates … Continue reading Don’t Punish Pain
By Jeannette & Jorie - Headache on the Hill, as we’ve discussed before, is an advocacy event held annually where advocates, caregivers, and those of us living with migraine and headache disorders come together to take legislative action at Capitol Hill. This year’s 11th annual Headache on the Hill brought about over 150 people, representing … Continue reading Words from Headache on the Hill Warriors
By Jeannette -Headache on the Hill is an advocacy event held annually on Capitol Hill and hosted by The Alliance Of Headache Disorders Advocacy with additional sponsorship by partnering organizations such as U.S. Pain Foundation. This year both my husband, Dennis, and I attended together. There were 150 advocates in total at Headache On The … Continue reading Headache On The Hill: One Advocate’s Journey
By Wanda - Hope, as an intransitive verb is defined as to cherish a desire with anticipation; to want something to happen or be true. As a transitive verb it is defined as a desire with expectation of obtainment or fulfillment or to expect with confidence according to the Merriam-Webster dictionary. A simpler description of … Continue reading What’s the Hoopla About Having Hope?
By Kirstie & Jorie - When it comes to knowing your rights with the medical field, things can get murky. The fine print isn’t always easy to read and most of us sign our names away anyway, prompted by quick receptionists and needing to just get it done. But do you really know what your … Continue reading Understanding Your Medical Rights
By Jorie - If you have a chronic illness of any kind, chances are you are familiar with the dark shadowy monster that lurks in the background just waiting to pounce on you. That monster is mental illness, and specifically for me, bipolar disorder and panic disorder. They so often go hand in hand, swinging … Continue reading Juggling Migraines and Bipolar Disorder