By Robert (Guest Writer) - Dear Dr ______, I owe you a short note. I’m about to call a spade, a spade. I’ve been left in an anxiety dither for these months since I saw you in October. That’s why I haven’t followed up with anything. I was VA-stunned by deja vu when you asked … Continue reading A Veteran’s Story of PTSD & Headache
By Jeannette - Within the chronic illness community we speak a lot about the importance of visibility. We discuss the need to self-advocate, to have our rights heard, and the importance of speaking out against stigma, especially when you have an illness that has debilitating symptoms that impact our interactions with the world, but aren’t always … Continue reading The Vulnerability of Visibility
By Wanda - Do you make lists? I do. Tons of them. So many lists! Contacts, recipes, shopping lists, allergies, to do lists, appointments, doctors, medications, surgeries, conditions, test results, books to read, health studies... I make SO many lists! So, medications -- 27 at the moment. Some daily, some as needed, some I’d rather … Continue reading Chronically Fabulous at Fifty
By Jorie - As we exit 2018 and enter 2019, there’s a topic I want to touch on that I think is important for all of us to remember and practice. Scrolling through my social media feeds these last few days has left me feeling both inspired and defeated. Inspired because I’m so happy to … Continue reading Looking Back with Authenticity
By Winslow - Most of us who struggle with migraines or other health conditions are forced to spend most of our money on medications, doctor visits and treatments and are not always able to work. This can cause a financial strain, especially around the holiday season. But take heart, below is a list of inexpensive … Continue reading Gift Ideas When Money is Tight
By Kirstie - It’s just what it sounds like, the little quirks you hear whispered about you or someone else just because you’re a little bit different. These are the intrusive words that are told to disabled individuals and many others living with an invisible illness. The words that stick with and haunt some of us … Continue reading Pet Peeves of The Disabled Community
By Jennifer - Planning to travel when you have a chronic illness requires you to pay close attention to details that others take for granted. Even though it may be difficult, sometimes you have to put aside your fears and anxiety and just go for it. Life is too short to let time slip away … Continue reading Planning to Travel When you Have a Chronic Illness
By Laura - Caregivers are the people that pick us up when we’re at our lowest. They are the people we turn to in a pinch and arrive at our doorstep in a heartbeat. They are the friends and family we can call at 3am when our symptoms are keeping us wide awake and we … Continue reading An Open Letter to Our Caregivers
By Liza - Life would be so much easier for those of us in the chronic pain community if our invisible illness showed up like a thought bubble over the top of our head. You would be heading into work, driving on the freeway and you could see to the left of you, a gentleman … Continue reading Hidden in Plain Sight
By Wanda - There are few things you need to know when talking migraines and disability. First, either you, or someone you know suffers from migraine—and no, not just because you are reading this blog. According to NIH and a 2015 study, migraine effects roughly 1 out of every 6 Americans, and 1 in 5 … Continue reading Migraine & Disability: A Battle Fought Round the World
