By Wanda - Do you make lists? I do. Tons of them. So many lists! Contacts, recipes, shopping lists, allergies, to do lists, appointments, doctors, medications, surgeries, conditions, test results, books to read, health studies... I make SO many lists! So, medications -- 27 at the moment. Some daily, some as needed, some I’d rather … Continue reading Chronically Fabulous at Fifty
By Brittany - It’s been 4 years since I was diagnosed with chronic migraine. Having never experienced a migraine prior to the concussion that caused this chronic neurological disease, to say the last 4 years has been a challenging learning experience is an understatement. This last month has been particularly challenging, with each day being … Continue reading 5 Ways I’ve Learned How to Survive Chronic Migraine
By Jorie - For 18 long months I planned, and planned, and planned my perfect dream wedding. I thought the day would never come. My now-husband, Trey, proposed to me in January of 2017 and as soon as the ring hit my finger I hopped on Pinterest searching for inspiration, joined Facebook wedding planning groups, … Continue reading How I Survived My Wedding as a Chronically Ill Bride
By Jeannette - On social media I often see fellow patients with chronic pain and illness, questioned and put in the position where they have to explain how they can have a bit of beauty, joy, smiles, and soul shine, while they are sick and in daily pain. Apparently, a smile must negate pain. I … Continue reading You Are Allowed To Live With Pain & Still Shine
By Wanda - Have you ever stopped and listed all the treatment methods you’ve used to manage the pain of migraines? We spend so much time, energy, and money on preventive and abortive treatments it can be daunting. According to the Migraine Relief Center, “the costs of migraines in the United States is $78 BILLION … Continue reading Looking Forward to Relief
By Liza - We spend so much of our youth trying to acquire independence. We want to get out of our parents’ house and we want to go off to school and we want to learn how to drive. Driving has to be one of the pinnacles of independence. You suddenly have the freedom to … Continue reading On the Loss of My Independence, & How I Found it Again
By Sarah Faith - Chronic pain drains your energy, leaving you exhausted. It keeps you from being productive. It turns your life inward. It causes isolation, depression, loss of hope, and even loss of motivation to get better. First you give up and then eventually even begin making excuses above and beyond your actual limitations, … Continue reading My Journey to Self Care & Self Discipline
By Dana - Migraineurs and spoonies quickly learn that change doesn’t operate on a schedule. Treatments work until they don’t. Doctors order new medications or regimens. Migraines and pain flares occur even with the best management programs. Patients often find themselves working to adjust to a different course of treatment, only to find they have … Continue reading Handling the “Next Normal”
By Jorie - As we exit 2018 and enter 2019, there’s a topic I want to touch on that I think is important for all of us to remember and practice. Scrolling through my social media feeds these last few days has left me feeling both inspired and defeated. Inspired because I’m so happy to … Continue reading Looking Back with Authenticity
By Sheri (Guest Blogger) - On this day, I walked out side into the morning sunshine. In this moment of this day, I feel joy. I am optimistically cautious as I emerge into the warmth of the light, away from where the curtains remain drawn. As I write this to you, I feel a smile … Continue reading An Open Letter to My Family & Friends
