By Jeannette - Within the chronic illness community we speak a lot about the importance of visibility. We discuss the need to self-advocate, to have our rights heard, and the importance of speaking out against stigma, especially when you have an illness that has debilitating symptoms that impact our interactions with the world, but aren’t always … Continue reading The Vulnerability of Visibility
By Jeannette -It’s a critical time for all people who are impacted by pain, regardless of the cause. It is a time to unite on our journey with pain and over the next 90 days join the discussion of the gaps in the management of pain and the solutions put forth. This is a time … Continue reading What is the Draft Report on Pain Management Best Practices, Why Does it Matter, & How Can You Have A Voice?
By Sarina - Awareness is desperately needed for both headache disorders and chronic migraine. Both of these conditions are incredibly misunderstood by medical professionals as well as by your average Joe on the street. People who suffer from headache disorders and chronic migraine simply get told to “take some Tylenol and drink water,” as if … Continue reading 5 Easy Ways to Raise Awareness
By Jorie & Jennifer - How We Got into Advocacy Jorie: Advocacy. That word didn’t bear much meaning to me… until I got sick. When I got sick, chronically ill to be exact, advocacy took on a huge, incredible, magnificent, symbolic meaning for me. Right now, I am diagnosed with chronic complex migraine, episodic cluster … Continue reading Why We Advocate & Why You Should Too
By Jorie - The opioid crisis is bigger than ever, and as a result the government has stepped in to try to correct it. But their methodology isn’t exactly the most helpful for those of us living in chronic pain. The Don’t Punish Pain Rally seeks to raise awareness of this issue. Patients and advocates … Continue reading Don’t Punish Pain
By Jeannette & Jorie - Headache on the Hill, as we’ve discussed before, is an advocacy event held annually where advocates, caregivers, and those of us living with migraine and headache disorders come together to take legislative action at Capitol Hill. This year’s 11th annual Headache on the Hill brought about over 150 people, representing … Continue reading Words from Headache on the Hill Warriors